可核验的证据
Verifiable evidence

17 例观察案例数据

17 observational cases

不挑选、不隐藏。以下含仍在干预中、以及结果存在边界性的个案,每一个数字都可回溯到医院书面报告。

Nothing cherry-picked, nothing hidden — including cases still in progress and borderline outcomes. Every figure traces back to a written hospital report.

我们如何要求自己
Our data standards

数据保真

Fidelity

所有量表数值严格引自医院书面报告原文,无估算、无补填,缺失即标注“——”。

All values quoted verbatim from hospital reports; missing data marked “——”, never estimated.

宁缺毋滥

Rigor over volume

仅有口头告知、无书面复查报告的个案,已从数据库整体剔除。

Cases lacking written re-evaluation were removed entirely.

判定唯一

Single standard

“脱离诊断”仅以医院书面复查报告的明确记录为准。

“No longer meeting criteria” relies solely on written hospital re-evaluation.

编号脱敏

De-identified

ZM001–ZM017 全部使用编号与化名,不披露可识别身份信息。

All cases use codes and pseudonyms; no identifying information is disclosed.

案例总表(脱敏)

Case overview (de-identified)

“最新智商/发育商”依原始报告工具而定;“——”表示该项无医院书面记录。

“Latest IQ/DQ” depends on the instrument used in the original report; “——” means no written hospital record for that item.

编号Code 性别Sex 确诊月龄Age at dx (mo) 严重程度Severity 确诊量表Dx scales 最新量表Latest scales 最新IQ/DQLatest IQ/DQ 当前状态Status
ZM001M45中度ModerateADOS-2 18ADOS-2 3102不再符合诊断Off-criteria
ZM002M25重度疑似Severe (susp.)发育商 66DQ 66韦氏 99WISC 9999正常范围Typical range
ZM003F47重度SevereADOS-2 16ADOS-2 478不再符合诊断Off-criteria
ZM004F35轻度MildADOS-2 比较分3ADOS-2 CS 3比较分2CS 2104极轻/无证据Minimal
ZM005M28中度ModerateADOS-2 12 / CARS 33ADOS-2 8 / CARS 1898干预中In progress
ZM006M50重度SevereADOS-2 17ADOS-2 17CARS 27 / ABC 23CARS 27 / ABC 2377不再符合诊断Off-criteria
ZM007M43重度SevereADOS-2 18 / CARS 36脱离诊断Off-criteria77干预中In progress
ZM008F31重度Severe临床确诊Clinical dxCARS 17 / ABC 18126无明显症状Off-criteria
ZM009M28中度ModerateADOS-2 18 / CARS 30CARS 27.5 / ABC 6273非孤独症Off-criteria
ZM010M48中度ModerateADOS-2 比较分5 / CARS 31ADOS-2 CS 5 / CARS 31比较分1CS 1117干预中In progress
ZM011M21中度偏重Mod-severeADOS-2 16ADOS-2 16CARS 24——干预中In progress
ZM012F48轻-中度Mild-modCARS 31 / ABC ~63ADOS-2 1——不再符合诊断Off-criteria
ZM013F40轻度MildADOS-2 9ADOS-2 2 / CARS 23.5发育商 85DQ 85干预中In progress
ZM014F24中度ModerateABC 75 / 警示28ABC 75警示 0Alert 0101不再符合诊断Off-criteria
ZM015M31中度偏重Mod-severeADOS-2 22CARS 28 / ABC 9104干预中In progress
ZM016M24中度ModerateADOS-2 8 / ABC 70比较分1CS 1100不再符合诊断Off-criteria
ZM017M40中度ModerateADOS-2 14ADOS-2 7 / CARS 26114CARS非孤独症(边界)Borderline

重要说明:以上 17 例为自愿参与、已取得进展或完成课程的家庭,属于自我选择样本,存在明显的选择偏倚。本表仅作描述性呈现,不计算“有效率”,不能据此推断方法的因果疗效。“不再符合诊断标准”指经医院书面复查不再满足孤独症医学诊断标准,并非“治愈”。部分个案仍在干预中或结果存在边界性,已如实标注。

Important: These 17 cases are a self-selected sample with clear selection bias (families who volunteered and made progress or completed the program). This table is descriptive only; no “success rate” is calculated and no causal efficacy can be inferred. “No longer meeting criteria” means a written hospital re-evaluation no longer met ASD diagnostic criteria — not a “cure.” Cases still in progress or with borderline results are labeled as such.

数据之外
Beyond the numbers

走过这条路的家长,想说的一句话

A word from parents who walked this path

登登妈妈
A mother

“获取光明,对普通孩子只是抬头的事,对我们的孩子,却需要站到喜马拉雅山岗。”

“For a typical child, reaching the light is as simple as lifting the head; for ours, it meant climbing to the peak of the Himalayas.”

如意妈妈
A mother

“孤独症三个字,曾像冰锥狠狠刺进我的心脏。而现在,她在班里当上了升旗手。”

“The word ‘autism’ once pierced my heart like ice. Now she raises the flag at school.”

今今妈妈
A mother

“三年换一个娃,一日不多,一日不少。那句‘我练得太累了,但我还能坚持’,值了。”

“Three years to bring my child back — not a day more or less. ‘I’m so tired, but I can keep going’ — it was worth it.”

康康妈妈
A mother

“让沉睡的灵魂慢慢苏醒,让封闭的世界渐渐光亮。这条路,我们走过来了。”

“A sleeping soul slowly awakens; a closed world gradually brightens. We made it through.”

这些话不是证据,量表和报告才是。但它们是这条路上,真实走过的人留下的脚印。

These words are not evidence — the scales and reports are. But they are the footprints of those who truly walked this road.